Here at the Gordon house, we are so ready for spring. I have to say though we haven't had the illness at our house this winter like we usually do. Jaren wasn't in the hospital at all this winter. He did end up in the hospital the middle of March, he was fine all weekend and one Sunday afternoon he said I don't feel so good, I took his blood sugars and he was high so I gave him some insulin and he wasn't feeling any better so I took it again and it had only gone down by 100, he started vomiting and couldn't stop so I took him to the ER so that he could be rehydrated because usually by the time he starts throwing up he is dehydrated and I can't get it under control myself. When we got to the ER they were really busy but they started the IV and he started feeling better but they couldn't get his sugars to go down and they were worried about some of his blood work, his Anion Gap was opened and acid level wasn't going down either so they decided to admit him to the ICU. It was a little stressful because it was about 1 am, when they got us up to his room the doctor came in and asked Jaren " what brings you here today?" Jaren looked at me and looked back at the doctor and said "um, a van" the doctor started laughing thank goodness and said "I guess I should have asked that a different way." I had to laugh myself it was actually really funny. I then had to explain to them that he suffers from Dementia because of the MLD and I had to explain what MLD was because not many people including doctors know anything about MLD. Since that hospital visit he just hasn't been himself, his sugars have been out of control and I can't seem to keep him under 300. I went to see my counselor and told him about it and he told me that the MLD could be making the brain do things that the insulin is being affected and not working correctly. I don't know what to do about that besides just taking sugars and giving insulin. The pain has been so bad as well that he has had to have major pain killers to keep it under control.
It has been a really tough year so far. RaKelle had to have surgery on her knee to finally fix it. I really didn't realize how much she helps until she couldn't. She is awesome!! I was focused on her a lot and I was trying to take care of Jaren and it was really hard. I didn't feel like I could leave him alone while we were at the hospital so I asked some neighbors to check on him. It was a LONG day but we made it through, she is doing really well one more week and her brace gets to come off. When Jaren was in the hospital I was so focused on getting Jaren better that I kind of let her fall to the back burner and she was sitting in the hospital with me and she put her foot up to elevate it and her whole foot was swollen I felt so bad.
Jaren has not been sleeping at night he wanders the house and wakes everyone up. He gets confused on where to sleep. Last week he woke Braxton up because he wanted to "talk" at midnight. Braxton didn't have the heart to tell him he was tired and to go back to bed so he sat up and listened and talked to him. I asked what he talked about and he told me that he said "your mom is so pretty I want to marry her." and Braxton told him he was already married to me and Jaren told him he wants to get married to me again. He said that Jaren kept talking about Ashlyn and how sometimes she is not nice, and he was talking about RaKelle and how tall she is. He talked a little bit about nintendo. Needless to say I couldn't get him up on time and he was late for school. I thought it was super cute of Braxton to stay up with his dad and just listen to him.
I get overwhelmed when they miss a lot of school but I feel like that is not something I want to fight them on. I feel like sometimes they just can't go to school and if they do they won't be able to concentrate so it really doesn't do them any good. I know they have to send letters home when they have had to many absences but I can't handle when I read them, that just makes one more thing I have to work out with the administration and it is overwhelming and frustrating even though they are super nice about it. I am trying my best to raise my kids and take care of him sometimes it is not as stressful as others and sometimes it gets to the point where I just want to run and hide and cry a lot. Sometimes I just want to stay in bed and sleep until it all goes away, but I know that is not possible.
