Sunday, January 18, 2015

Update

I haven't updated for awhile so I thought I would sit down and do an update.  Jaren is gaining weight back since he had the tube placed, it was a bumpy ride there for awhile but it is good now.  He is doing ok, he has his good days and his bad days, but seems to be pretty steady at the moment.  This week has been a little bit stressful because I couldn't keep his sugars to go below 500 he was nauseous and on my birthday I thought I was going to have to take him to the ER but I finally got it to go down some.  I actually gave him an insulin shot. (yeah me! first time ever) I have never had to give him one because he could always do them himself and then he got the pump so I didn't have to, but I needed them to come down fast before he started to vomit.  Thank goodness my dad came over and helped me do it.  I checked his blood sugars throughout that night and gave him another shot and it was finally down to 200,  I changed his pump tubing and insulin with a brand new bottle of insulin and he seemed a little better and then his home health nurse text me and told me they were high again I left work early and came home and he had a blockage in the tube so I changed it again and it worked a little bit better, on Friday I decided that I was going to change his basal rates on his pump and then I would let the Dr know what I did.  His sugars have now been in the 100's.  We met with the Neurologist in December after fighting to get an appointment them since July, and it was a depressing visit.  He told me that I needed to start looking for a home for Jaren because they have a nurse and staff that will be able to be with him 24/7 and he can wander and not have to worry about it because someone would be there to follow him around, (yeah right).  I can honestly say I have no clue what was said after that my brain went into shutdown mode and I couldn't think of anything except "I can't put him in a home yet, I can't, I can't, he will hate me"  I was a little frustrated that the Dr started off with that when he walked into the room.  I bawled the whole way home and didn't know what to do.  I talked to the kids about it and we decided as a family that he needed to stay home with us as long as he can.

Christmas this year was amazing, I was a little bit worried how we were going to make it but I shouldn't have we were blessed by so many people that care for our family.  I am so thankful that we have such great people in the world that are so willing to help others.  I am in awe at how many people helped that wouldn't leave their names so I don't know how to thank them.  If you were one of the many people that helped us out this last Christmas Thank you so much for your kindness and love that you would be willing to help us. By Christmas Eve we were all in tears when we got home from a family gathering and there sat a box of food on our porch again.  I am so thankful that my kids have the ability to know when Heavenly Father has helped us in so many ways.  I am thankful that my kids are so gracious when we receive gifts and things that the first thing they want to do is send a Thank you note.

News Years always brings new challenges.  This year is no different.  RaKelle is starting to be interested in BOYS and she is starting to be a REAL teenager, having her phone with her all the time and texting all the the time.  It is a little weird for me to have her be like that, she is still a good kid but she wants to be with friends a lot more than she ever has before.  I don't really mind it but it gets a little overwhelming because I have to drive her everywhere.  I decided that I have to pick my battles with her and being with a group of friends that are good kids is not one that I want to fight about.   She is very open and honest with me and if I tell her I don't really want her to go out and that I am exhausted and I don't want to take her anywhere she always understands.  I am trying to figure out the best way to handle BOYS with her and I know it is difficult for any parent but it seems to be a little challenging for me because I don't have a spouse to back me up, or one that will tell her no, or a dad that will be cleaning his guns when they pick her up for dates I still have a few months for that one though (thank goodness).  When she does have friends over we always have to remind Jaren to be nice and to not say inappropriate things while they are here.  I am looking forward to when she gets her license so that I don't have to drive her everywhere.  I am also a little nervous about having a teen driver but I think she is responsible that she will be ok.  Her grades are amazing she is getting all A's and I am so thankful for her teachers and administrators at school that help her out with so much when needed.  She is getting ready to go on tour for her Choir group and she is very, very excited to be going.

Ashlyn is doing really, really well in school as well.  She is always busy doing her homework and trying to keep up her good grades.  She had a hard time adjusting to the new VP that the school got because Mr. Varga had a different opportunity and moved on to a different school, we were all sad to see him go but she is adjusting.  I haven't had a chance to meet with the new one yet but I hope to do so in the near future.  Her counselor is really good and she is always willing to help Ashlyn out any way that she can.

Braxton is a 10 year old boy with lots of energy.  He is doing well in school as well.  My office is right next to his class so he comes into see me A LOT, he brought his lunch down a few times to my office to eat with me it was cute.  I really enjoy working at his school.  He has a lot of friends and he is playing basketball with some of them right now.  Just this past weekend was a huge milestone for him he slept over night at his friends and he didn't come home!! I know that is weird to most people but for him it is huge.  He even went back over tonight for a sleepover because there is no school tomorrow.