New Year, New Challenges!!

It's the beginning of a New Year, yay we made it another year! but with a New Year comes new challenges, Christmas was wonderful this year, we had so many angels watching over our family and we were taken very good care of, I am amazed at how people are so giving even in these hard times that the world is experiencing.  I am sure it wasn't easy for some of the people that helped out.  We had a secret Santa, I don't know who it was but if you read this blog a huge THANK YOU to you for helping make this Christmas a memorable one for our family, we might not have another Christmas together.  I was also able to stay home over the holiday break because I work at a school, we did a lot of fun family things together, which makes it more apparent how blessed I was to lose my job earlier and be able to find a job that I can be home when I need to be home.

Now the New Year is here and the challenges of the disease are very apparent, Jaren is still on Hospice and will re-certify AGAIN this month so another month of looking for all the stuff that is going wrong.  I went to breakfast with a really good friend over the holiday break and her husband mentioned to keep 2 seperate journals, one for the good to look at and one for the not so good, what a great idea.  Thanks Brandon and Ronni. 

Jaren is still doing ok, he has been in a tremendous amount of pain and a lot of meds for the pain, which means his legs are not as stable as they have been, he was using a cane and was starting to trip and not walk so good with the cane so they brought a walker for him which will help stabilize his walk a little better.  He qualified for Medicare and that is another challenge for us to get all the paperwork straight and what they pay for and what we have to pay for and who does what and when, WOW what a change.  I don't even know if they will pay for his insulin pump supplies, it would be nice to get everything in one letter and one mailing instead of getting paperwork every single day and trying to figure it all out, I think they would SAVE a TON of money if they only sent paperwork one time instead of daily.  I seriously have 3 files that have Medicare and Social Security stuff in them and they are packed full.  We are excited to start the New Year and see what we learn this year from the MANY challenges we will face together.  Thanks for the support of everyone that has helped us along our journey and those that will continue to stick by our side and support us, through the easy and the hard times!!