She made it

RaKelle made it the ENTIRE week at Brighton Girls camp, she was able to call home every night and I think that helped her a lot.  Tuesday when she called she was in tears and it took all I had to not say I will come get you right now, but she made it! she was so proud of herself and I was too.  She has informed me that she is not going next year but we will see what the year brings she might change her mind.  It helped Jaren that she was able to call home he about drove me nuts, he missed her horribly and wanted to go get her everyday I had to stand next to him while he talked to her on the phone so he didn't say anything about her coming home, by Friday he was going crazy he had been really ornery the whole week because he missed her, he was extra clingy to me because he didn't know what else to do.  The first thing he told her when she came home was you can never leave me again its to hard, by Wednesday I was ready to hurt him because he kept asking when she would be home and he wasn't very nice.  I didn't even think about how hard it was going to be for him I knew it was going to be hard on her and the other two didn't like her being gone either but that didn't stop them from fighting they fought the whole week, I didn't get to sleep through a night because they were missing her they would cry for no reason and they didn't like her being gone.  When she got home we went to the fabric store and she was able to pick out some fabric for a quilt that sis. Buchanan was making for her because she made it the whole week she chose butterflies because that is the symbol of MLD and she wants everything to be butterflies lately we were invited to the Buchanans house for family home evening last night and we were able to tie the quilt with her and she finished it while we were there so she got to sleep with a new quilt last night.  Jaren was also having a hard time because she was camping and he loves camping, and before she left we found out that some family went camping and didn't include us and his feelings were hurt and he was very upset, that is one thing that he can still do is go camping he enjoys the mountains and fishing not so much hiking anymore but he can still do some things. 

Jaren is still not eating he is eating better but not what he usually does, I am thinking it is just part of the disease and that it will never go away which will help out with the food budget!! He seems to be satisfied when he does eat so I guess I can't really worry to much.  He is very nauseas it seems all the time and he has had some severe migraines lately, I have medication that helps with the nausea but it makes him so sleepy that all he will do is sleep if the nausea is really bad I do give him some I would rather have him sleep then be throwing up all over the place.  He still wants to be playing nintendo ALL day long which most of the time is ok but he won't do his chores and then he gets ornery and yells at the kids and he can't stand when things are out of place I always have to say don't worry about it just leave it alone we will take care of it when we are finished with whatever we are doing.  He is very critical of the kids when they do chores he tells them all of the things they didn't do instead of thanking them for actually doing the chore, I have to remind him that at least they are doing something and they will get to the other things when they can, I guess they just don't do it fast enough for him or his way.  He is very hard to live with sometimes, he likes to ruin a lot of the fun he doesn't like to do anything and he gets irritated when we like to do it without him, sometimes I just make him come he doesn't always like it and then sometimes I wish I wouldn't have brought him but I don't have a choice all the time to allow him to stay home by himself because he physically and mentally can't do it.

The kids start school on August 29 and I am excited maybe the fighting will slow down a little, I also start working on that day and I am hoping that Jaren will adjust well to the new schedule AGAIN.  He just doesn't understand what keeps happening I think it is frustrating to him but now with school back in the schedule should stay the same.  I am probably going to have to take him to the daycare a couple times a week so I don't have to worry about what he is doing or not doing.  I am so grateful for the job that I have that I am able to check on him if I need to and that they are so understanding of my situation and I am so blessed to have the boss that I have she is amazing.  I am grateful for the wonderful people that I work with that care about me so much that they ask questions and try to help wherever they can.  I don't know where we will be from one day to the next everything is so unpredictable but I hope and pray that he will stay healthy enough to stay at home with us as long as I can care for him and he doesn't hurt any of us.  I have been very blessed with amazing friends that help me through some tough times.  I am thankful for the support that my family gives and for the opportunities they include us in on and their willingness to help out.