I have been thinking a lot about how my life is not that "normal" and I have to laugh at some of the things that I say to Jaren. I never thought I would say some of the things that I say to my husband or about my husband.
1. go to time out for fighting with your kids.
2. you can't say things like that in public, you will get hit.
3. go play nintendo before I hurt you.
4. I am watching my friends husband tomorrow, he has the same type of thing as Jaren. If you don't behave you will be grounded.
5. come here so I can help you put your pants on correctly
6. let me help brush your hair
7. go to bed or you will be grounded tomorrow.
8. please go on a walk but don't get lost.
9. no I don't need any help go watch a movie or play nintendo
10. please go to sleep so that I can go to bed and sleep for some of the night.
I guess I just have to laugh at this, these things you say to your children most of the time but I never in a million years thought that I would have to treat my husband like a child and put him in time out and tell him to stop fighting with his kids. Most of the time he doesn't know what he did to get in trouble he just knows that when I am mad he better go to his room and think and then he has to apologize even though he has no clue what he did.
Yesterday was really scary for us, we woke up late and his blood sugar goes low in the morning so I knew he would be low but when I got to him he was so zoned out and then he started to have a seizure, luckily I caught it in time and gave him some food before the seizure got worse and he got to a point where he wouldn't eat anything. He was so out of it yesterday he slept pretty much all day.
Sometimes I feel like I can't keep everything together. Our Wii broke a couple of weeks ago and I can not tell you how much I have wished for another one. He doesn't stop, we will be watching TV together and he has something to say about EVERYTHING that is going on. He just follows me everywhere and he keeps asking why the Wii doesn't work and when can we get it fixed. I didn't realize how nice the Wii was for keeping him entertained and occupied so that I could get things done without him always down my back for everything that needs to be done or when it is done he finds everything wrong with it. I thought I was going crazy with him playing 24/7 but really it was a help. I feel like he is progressing so much that he might even forget how to play by the time we get a new one.
School is out now and I am hoping that things will transition smoothly. I know it is hard for Jaren to have his schedule interrupted but I can't help it. I am sure he will throw some tantrums and get sent to his room for time out but we all live here and he needs to cooperate with all of us as well. I will have a meeting with the kids and explain to them that when they are home he isn't use to it and that he is used to doing his own thing so they need to be patient while we all adjust to the new schedule. He will still go to the daycare on Tuesdays with his friend and my friend and I and the kids will get to do some fun things together without any whining or tantrums from the dads.
I cannot imagine what you are going through. My father had alzheimer's and I cared for him at home for a long time. But, I don't think things were ever as tough as they are for you. Please know that people are thinking about you are in our thoughts and prayers.
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