Jaren and I have been going to the Stake Valentines Dance for 16 years this year and every year he does less and less. The dance was our very FIRST date. We went with a couple that live by us and it was fun. Jaren didn't do a whole lot but I did some line dancing, he didn't even want to slow dance with me, one time I finally got him to dance with me and he complained that his back was hurting and wanted to sit down so we sat down pretty much the whole night. I think it was a kick of reality that we can't do things like we used to. I don't know how many more we can go to it is hard to sit and watch all these couples dance and have fun and we just sit on the chairs and watch. It is hard to think that we used to actually know how to do a lot of dancing and we were pretty good at it. The couple that we doubled with was very nice and they can dance it was nice I just wish that Jaren would have been able to do more.
I know it's a "Sweethearts" Ball but I wished they could have played more line dancing songs so that I wasn't sitting all night long. Oh well, maybe we shouldn't go anymore it gets harder and harder every year.
Sunday, February 10, 2013
Doctors appointment
We went back up to the U of U for Jaren's neurology appointment to go over his test results from his neuropsychological exam and his MRI that he had back in September, those appointments are always a little overwhelming but we made it and it wasn't to bad until after we got home and it all set in.
They called us back and did the usual vitals and then they always do a mini mental exam before the Dr. comes in and at the U it is always a student first and then they both come in together and talk, this time the Dr. and the student asked me to come into their office alone with out Jaren so that they could talk to me. I went with them and they had his MRI's pulled up on the computer and went over them with me, they said that the report states that there has not been any change but they are going to question them because they see significant changes on the scan. They showed me the scan from the last time and then the scan from Sept of 2012 and I could see the changes and I am not a Dr. I was pointing things out to them and they were agreeing with me that I was not crazy and that the changes were very significant. The results from the Neuropsychological exam showed that he struggled with it but that he was very compliant and did the best he could. He has a hard time following instructions and he scored 1 out of 10 on some of the test and 2 out of 10 on others which is not good, they which makes sense and it coincides with the MRI. His brain is shrinking and you can definantly see that. I couldn't believe the change.
He talked to me about how tough things are going to get. I asked him to give me a timeline and he said there really isn't a time line but the brain is not a threaten to his life now, he said that people that have Dementia are more likely to get hit by a car because they don't know not to walk out in front of one, or forget the chew their food and choke to death.
We then discussed some options of where I could get some support from and I told him that I had been working with the Alzheimers Association and that they wanted to use the kids letters on a national level. He stated that he has an undergraduate class that is trying to come up with a curriculum for school age kids that would help them deal with terminal illness in their families and asked if I would be a guest speaker for his class and if they could call me with any questions and of course I said YES, I would love to help. This is why I am going through this trial so that I can help others and tell them what I know to save them a lot of trouble, I told him that a caregiver is a caregiver no matter what disease the patient has it is hard work and sometimes frustrating and overwhelming. It feels really good to know that with everything that I am going through that maybe in the future I can help those that need the help, that I had to fight for day and night.
They called us back and did the usual vitals and then they always do a mini mental exam before the Dr. comes in and at the U it is always a student first and then they both come in together and talk, this time the Dr. and the student asked me to come into their office alone with out Jaren so that they could talk to me. I went with them and they had his MRI's pulled up on the computer and went over them with me, they said that the report states that there has not been any change but they are going to question them because they see significant changes on the scan. They showed me the scan from the last time and then the scan from Sept of 2012 and I could see the changes and I am not a Dr. I was pointing things out to them and they were agreeing with me that I was not crazy and that the changes were very significant. The results from the Neuropsychological exam showed that he struggled with it but that he was very compliant and did the best he could. He has a hard time following instructions and he scored 1 out of 10 on some of the test and 2 out of 10 on others which is not good, they which makes sense and it coincides with the MRI. His brain is shrinking and you can definantly see that. I couldn't believe the change.
He talked to me about how tough things are going to get. I asked him to give me a timeline and he said there really isn't a time line but the brain is not a threaten to his life now, he said that people that have Dementia are more likely to get hit by a car because they don't know not to walk out in front of one, or forget the chew their food and choke to death.
We then discussed some options of where I could get some support from and I told him that I had been working with the Alzheimers Association and that they wanted to use the kids letters on a national level. He stated that he has an undergraduate class that is trying to come up with a curriculum for school age kids that would help them deal with terminal illness in their families and asked if I would be a guest speaker for his class and if they could call me with any questions and of course I said YES, I would love to help. This is why I am going through this trial so that I can help others and tell them what I know to save them a lot of trouble, I told him that a caregiver is a caregiver no matter what disease the patient has it is hard work and sometimes frustrating and overwhelming. It feels really good to know that with everything that I am going through that maybe in the future I can help those that need the help, that I had to fight for day and night.
Sunday, January 20, 2013
new year challenges
The new year is here and it is going so fast. I feel like I can't keep up with everything. My birthday was on the 14th and they took me to dinner and then we didn't do anything else it was really, really nice, lately I haven't wanted to do anything I just want to stay home and do nothing. That never happens so when I get the chance to do nothing I enjoy it.
I was supposed to have a meeting through the Alzheimer's Association with my stake president and all the bishops and their counselors to raise awareness about memory impaired and to hopefully start a support group in my community. I had prepared for it for a few months and I was ready, they called and changed it on me. It was a little frustrating because I had to prepare mentally, physically, and emotionally, and I had my kids write things down about what it is like to live with their dad who has memory problems and acts like a child. It was very hard to read them and it opened my eyes a little bit to the fact that they are seeing the decline in his personality and other things like that. I don't know if you can read them but I thought it makes it more real when it is in their handwriting. Hopefully when I do have the meeting it will open many eyes to the fact that it affects the entire family. I tried to make them as readable as possible.
All Jaren wants to do lately is sleep the other day I came home from work and he was in bed and said he had been there all day, and then he wanted to sleep more. He is so confused about things it gets irritating. He can't remember how to play all the games that he plays and then he loses everything, when I come home from work he has the tv on with a Wii game and the DS by him and he tries to play all of them at once but they are not even close to the same game so he gets frustrated. I am so thankful for the opportunity I had of taking care of him but it is starting to take its toll on me. I am so thankful for the things I have learned from being a caregiver and I am thankful for the great kids I have and that they are turning out to be sympathetic and loving to people. I am thankful for the great people that have helped me through these trials.
I don't want to sound greedy but I want a "normal" life, I want to have a "normal" marriage I want to be able to talk to my spouse like I used to, I want to be able to tell him something and not have him ask so many questions and then forget everything that we just talked about. I want to be able to have my spouse sleep in the same room with me, I want to be able to hand over the kids grades and have someone else take care of it, and someone to help me discipline the kids when they are not behaving. I want to be able to sit with my whole family at church, and not be treated different because my husband is not like other priesthood holders and he can't do things that most of them can. I want to be able to go to work and not have to worry that the kids are stressed out at school not being able to concentrate at school, and I want a spouse that can work and that when we come home from work we can talk about what happened and things like that.
I was supposed to have a meeting through the Alzheimer's Association with my stake president and all the bishops and their counselors to raise awareness about memory impaired and to hopefully start a support group in my community. I had prepared for it for a few months and I was ready, they called and changed it on me. It was a little frustrating because I had to prepare mentally, physically, and emotionally, and I had my kids write things down about what it is like to live with their dad who has memory problems and acts like a child. It was very hard to read them and it opened my eyes a little bit to the fact that they are seeing the decline in his personality and other things like that. I don't know if you can read them but I thought it makes it more real when it is in their handwriting. Hopefully when I do have the meeting it will open many eyes to the fact that it affects the entire family. I tried to make them as readable as possible.
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| RaKelle's letter she is 13 |
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| Ashlyn's letter she is 11 |
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| Braxton's letter he is 8
It is affecting my kids at school, RaKelle is not doing very well her grades are suffering bad, Ashlyn just keeps worrying about everything, someone gets a stomach ache and she cries because she gets worried and clings to me like no other. I finally had to take Braxton in to the doctor for anxiety because he doesn't want to go to school, he doesn't want to go to any friends house, he doesn't even want to go anywhere with me but he also doesn't want me to go anywhere either it is getting frustrating. I hope that the medicine they put him on will work because I don't know if I can take the stomach aches and the crying much longer.
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All Jaren wants to do lately is sleep the other day I came home from work and he was in bed and said he had been there all day, and then he wanted to sleep more. He is so confused about things it gets irritating. He can't remember how to play all the games that he plays and then he loses everything, when I come home from work he has the tv on with a Wii game and the DS by him and he tries to play all of them at once but they are not even close to the same game so he gets frustrated. I am so thankful for the opportunity I had of taking care of him but it is starting to take its toll on me. I am so thankful for the things I have learned from being a caregiver and I am thankful for the great kids I have and that they are turning out to be sympathetic and loving to people. I am thankful for the great people that have helped me through these trials.
I don't want to sound greedy but I want a "normal" life, I want to have a "normal" marriage I want to be able to talk to my spouse like I used to, I want to be able to tell him something and not have him ask so many questions and then forget everything that we just talked about. I want to be able to have my spouse sleep in the same room with me, I want to be able to hand over the kids grades and have someone else take care of it, and someone to help me discipline the kids when they are not behaving. I want to be able to sit with my whole family at church, and not be treated different because my husband is not like other priesthood holders and he can't do things that most of them can. I want to be able to go to work and not have to worry that the kids are stressed out at school not being able to concentrate at school, and I want a spouse that can work and that when we come home from work we can talk about what happened and things like that.
Friday, December 28, 2012
Christmas
Christmas is over and now the new year will begin. I can't complain about how 2012 was there were a few bumps and some mountains but we were able to climb them and continue to move on. I have to admit though I am so tired and worn out, hopefully the mountains won't be as high to climb in 2013 but I have a feeling they might be a little bigger than 2012. As the MLD progresses it gets harder and harder to take care of him especially if he keeps getting pnuemonia and he doesn't get any symptoms. I took him to the Diabetic Doctor today and his A1C was 8.3 which is really, really, good for him. I thought for sure it would have been high because of the hospital visit for DKA at the end of November, and the holidays. The doctor was even amazed at how good it was. If I could just get him to leave his blood sugar machine where I know where it is it would be nice, he can't seem to keep track of it and it drives me crazy.
I also went in for a physical yesterday, I go every year it wouldn't be fair for my kids to lose both parents so I try my hardest to keep myself as healthy as possible, I did find out some problems I have though and if I take it serious and do my best I should be able to be better. I knew the stress would of being a caregiver would catch up to me sometime. I just have to remember to take care of myself even if it's just an ice cream with a friend or a brisk walk around the block or something to get my mind on other things beside Jaren's care.
I am so sick of cleaning up puke the stomach flu hit us this year and it has NOT been any fun. luckily it skipped over me but the rest of them got it and of course they all got it seperately so I cleaned up puke for a week straight. We haven't had the stomach bug for at least 4 years so the kids were not really sure what to do when they felt like throwing up. I have never done so much laundry in the middle of the night than I did that week. Thank goodness it was gone by Christmas, and I hope it doesn't come back.
This new year is going to be really hard the amazing person that lives by us that takes Jaren to the Temple is going on a mission to Germany and they are the best people in the whole world, I will miss them like crazy. Sister Buchanan was the relief society president and she will be missed by all but I don't know what I am going to do with our her, she will probably never know how much she has done for me and my family, and her husband is one of the best people as well, without fail he would come and check on Jaren every week. They have the most amazing children I had the opportunity of getting to know their daughter before she moved to Hungary with her family and she was also amazing, she helped me in so many ways I can't even tell you. She would come to my house and visit with me and fold laundry, or clean my kitchen. I love this family and will be very sad when they leave, thank goodness for technology so I can keep in touch with them through the computer. Hopefully the next few years will go by quickly and Jaren will still be here when they come home. Jaren has grown to really, really like Bro Buchanan and he is sad that he is leaving, I don't know if he really understands that he won't be able to see him every week like he has been. I guess we will find out when I go back to work and he doesn't come to visit with Jaren during the week.
I also went in for a physical yesterday, I go every year it wouldn't be fair for my kids to lose both parents so I try my hardest to keep myself as healthy as possible, I did find out some problems I have though and if I take it serious and do my best I should be able to be better. I knew the stress would of being a caregiver would catch up to me sometime. I just have to remember to take care of myself even if it's just an ice cream with a friend or a brisk walk around the block or something to get my mind on other things beside Jaren's care.
I am so sick of cleaning up puke the stomach flu hit us this year and it has NOT been any fun. luckily it skipped over me but the rest of them got it and of course they all got it seperately so I cleaned up puke for a week straight. We haven't had the stomach bug for at least 4 years so the kids were not really sure what to do when they felt like throwing up. I have never done so much laundry in the middle of the night than I did that week. Thank goodness it was gone by Christmas, and I hope it doesn't come back.
This new year is going to be really hard the amazing person that lives by us that takes Jaren to the Temple is going on a mission to Germany and they are the best people in the whole world, I will miss them like crazy. Sister Buchanan was the relief society president and she will be missed by all but I don't know what I am going to do with our her, she will probably never know how much she has done for me and my family, and her husband is one of the best people as well, without fail he would come and check on Jaren every week. They have the most amazing children I had the opportunity of getting to know their daughter before she moved to Hungary with her family and she was also amazing, she helped me in so many ways I can't even tell you. She would come to my house and visit with me and fold laundry, or clean my kitchen. I love this family and will be very sad when they leave, thank goodness for technology so I can keep in touch with them through the computer. Hopefully the next few years will go by quickly and Jaren will still be here when they come home. Jaren has grown to really, really like Bro Buchanan and he is sad that he is leaving, I don't know if he really understands that he won't be able to see him every week like he has been. I guess we will find out when I go back to work and he doesn't come to visit with Jaren during the week.
Sunday, December 9, 2012
It has been awhile
I haven't been able to keep up with the blog lately our computer stopped working and so we haven't had a computer for about 3 months. We finally got a different one and so I have a lot to catch up on. It is very hard to not have a computer when everything they do now days is on the computer, the kids have homework on the computer, I had to tell their teachers to please be patient with them and to send paper copies home with them because we didn't have a computer.
School has been in for awhile and the kids are doing really well. We had a fun halloween and then Thanksgiving came and that was NOT a good week at our house. The Sunday before Thanksgiving Ashlyn had the stomach flu, then Braxton came home from school on Tuesday and said that his head hurt and he had a fever that is what happens when he gets strep throat so I took him into Kidscare and the rapid strep came back negative, there isn't really much they could do with a negative test, Wednesday he still wasn't feeling the best but his fever had broke and he was not complaining of a headache like he was on Tuesday. Thursday while we were getting ready to go to Thanksgiving dinner with my family the doctor from Kidscare called and said that the culture came back positive, so he had to start on an antibiotic and couldn't go to Thanksgiving dinner, he was crushed. He got to eat a happy meal from McDonalds for his Thanksgiving, and he got to rent a WII game from redbox. We were on the mend and then Jaren woke up Sunday morning throwing up and couldn't stop. I text our home teacher and he came over and 2 neighbors came and helped give him a blessing, usually I can get it under control with insulin and powerade zero, but he couldn't even get out of the bathroom without puking. I decided it was time to take him to the ER and at least get fluids in him. His sugars were at 395 when I got him to the ER so they had come down a lot. He was so dehydrated it took the tech about an hour to get his IV in. The doctor came in and talked to us about his symptoms I told the dr it was probably DKA (diabetic ketoacidosis) and he agreed. But I also told him that a few months ago I couldn't get his sugars below 400 so I took him to the doctor and there was fluid in his lungs, he had pnuemonia and I had no idea thank goodness for the knowledge I have that when blood sugars are high it means there is an infection somewhere. He did a round of antibiotics and he felt much better. So the doctor at the ER listened to his lungs and he couldn't hear any fluid but he felt it would be best to do a chest x-ray thank goodness he did he had fluid in his lungs AGAIN. They decided to admit him but they couldn't decide whether to admit him to ICU or to a regular floor, they did more blood work and said that they had been able to get the DKA under enough control that they could admit him to a regular floor, the admitting doctor on the regular floor did somemore testing with urine, he said that the x-ray showed pnuemonia but they could do some different tests to see what strain it was. The Urine culture came back on Monday with the diagnosis of Legionella Disease which is caused through water sources, We can't figure out where he got it from but he was so dealthy ill it was scary. I have never seen him so ill and unresponsive as he was that morning it was horrible.
So now we are picking up the pieces of our not so good week and I took them into see my counselor with me because I was having a hard time dealing with everything and when Jaren didn't come home from the hospital until Tuesday they kept saying how weird it was to not have dad home, I knew it was going to be a tough week. When we were talking with my counselor RaKelle mentioned to him that our bunny died a couple weeks before this all happened and she said "it hurt so bad when her bunny died, she can't imagine how much it will hurt when her dad dies" as a parent what do you say to that I am just glad I was not alone when she talked about it. I made her an appointment to meet with her counselor this week so hopefully she can talk about things and know that it is okay to hurt when something like that happens. I try my hardest to keep my kids level headed about things and to know that any time they need to talk they can come to me but sometimes it is awkward to talk to mom about things especiallly dad dying. They are doing a little better now, we are trying to get used to our "new" normal, I don't think Jaren will ever get back to 100% he is going to be tired and weak and not have any energy, it is getting harder for him to walk, he was already getting worn out very easy but this pnuemonia totally wiped him out and I don't think he will get the strength back even the little bit that he had. I guess we will see.
I wouldn't feel good if I didn't thank the amazing people who stepped up and helped me out so much. neighbors who brought dinner in neighbors that came in and cleaned my kitchen and bathroom. My amazing co-workers who brought dinner in for a week so I didn't have to worry about cooking and the many thoughts and prayers received from so many. My awesome family who helped with the kids and my sister who brought them up to the hospital and listened to me when I had medical questions. I am so grateful to have such amazing people in my life that care so much to help out.
School has been in for awhile and the kids are doing really well. We had a fun halloween and then Thanksgiving came and that was NOT a good week at our house. The Sunday before Thanksgiving Ashlyn had the stomach flu, then Braxton came home from school on Tuesday and said that his head hurt and he had a fever that is what happens when he gets strep throat so I took him into Kidscare and the rapid strep came back negative, there isn't really much they could do with a negative test, Wednesday he still wasn't feeling the best but his fever had broke and he was not complaining of a headache like he was on Tuesday. Thursday while we were getting ready to go to Thanksgiving dinner with my family the doctor from Kidscare called and said that the culture came back positive, so he had to start on an antibiotic and couldn't go to Thanksgiving dinner, he was crushed. He got to eat a happy meal from McDonalds for his Thanksgiving, and he got to rent a WII game from redbox. We were on the mend and then Jaren woke up Sunday morning throwing up and couldn't stop. I text our home teacher and he came over and 2 neighbors came and helped give him a blessing, usually I can get it under control with insulin and powerade zero, but he couldn't even get out of the bathroom without puking. I decided it was time to take him to the ER and at least get fluids in him. His sugars were at 395 when I got him to the ER so they had come down a lot. He was so dehydrated it took the tech about an hour to get his IV in. The doctor came in and talked to us about his symptoms I told the dr it was probably DKA (diabetic ketoacidosis) and he agreed. But I also told him that a few months ago I couldn't get his sugars below 400 so I took him to the doctor and there was fluid in his lungs, he had pnuemonia and I had no idea thank goodness for the knowledge I have that when blood sugars are high it means there is an infection somewhere. He did a round of antibiotics and he felt much better. So the doctor at the ER listened to his lungs and he couldn't hear any fluid but he felt it would be best to do a chest x-ray thank goodness he did he had fluid in his lungs AGAIN. They decided to admit him but they couldn't decide whether to admit him to ICU or to a regular floor, they did more blood work and said that they had been able to get the DKA under enough control that they could admit him to a regular floor, the admitting doctor on the regular floor did somemore testing with urine, he said that the x-ray showed pnuemonia but they could do some different tests to see what strain it was. The Urine culture came back on Monday with the diagnosis of Legionella Disease which is caused through water sources, We can't figure out where he got it from but he was so dealthy ill it was scary. I have never seen him so ill and unresponsive as he was that morning it was horrible.
So now we are picking up the pieces of our not so good week and I took them into see my counselor with me because I was having a hard time dealing with everything and when Jaren didn't come home from the hospital until Tuesday they kept saying how weird it was to not have dad home, I knew it was going to be a tough week. When we were talking with my counselor RaKelle mentioned to him that our bunny died a couple weeks before this all happened and she said "it hurt so bad when her bunny died, she can't imagine how much it will hurt when her dad dies" as a parent what do you say to that I am just glad I was not alone when she talked about it. I made her an appointment to meet with her counselor this week so hopefully she can talk about things and know that it is okay to hurt when something like that happens. I try my hardest to keep my kids level headed about things and to know that any time they need to talk they can come to me but sometimes it is awkward to talk to mom about things especiallly dad dying. They are doing a little better now, we are trying to get used to our "new" normal, I don't think Jaren will ever get back to 100% he is going to be tired and weak and not have any energy, it is getting harder for him to walk, he was already getting worn out very easy but this pnuemonia totally wiped him out and I don't think he will get the strength back even the little bit that he had. I guess we will see.
I wouldn't feel good if I didn't thank the amazing people who stepped up and helped me out so much. neighbors who brought dinner in neighbors that came in and cleaned my kitchen and bathroom. My amazing co-workers who brought dinner in for a week so I didn't have to worry about cooking and the many thoughts and prayers received from so many. My awesome family who helped with the kids and my sister who brought them up to the hospital and listened to me when I had medical questions. I am so grateful to have such amazing people in my life that care so much to help out.
Sunday, August 19, 2012
I can't believe summer is almost gone
I can't believe summer is almost gone, school starts in a week it came and went so fast. I have been so busy keeping up with everything that I haven't been able to update for a long time. We have had a lot going on this summer, we met with a new Neurologist at the University of Utah and he specializes in cognitive development he was really really good and we liked him a lot. He told us that with MLD it is attacking the frontal lobe of the brain and so he said that the MLD is causing what they call Frontaltemporal Dementia and gave me some numbers to call so that I can get some more help with Jaren and his care. He goes in on Friday for a Neuropsych evaluation and that will give us a baseline to where he is right now, and we can watch the progression a little better. It is a 4 hour test and he is going to be so overwhelmed and exhausted I don't know how he is going to handle it. He also set us up with a Social Worker that knows of some things in the community that could potentially help me, but I haven't had a lot of time to call any of them. We met with a health educator that told us about a bank that we can store his DNA in so when our kids are old enought to find a spouse they can have some of the DNA withdrawn from the bank and find out what the gene is so that their spouse can be tested so their children won't be affected. We don't know yet what gene it is because we haven't been able to get that testing done yet, we have not had cooperation with that part of the testing.
I can't believe school is starting again already. RaKelle will be in 8th grade. Ashlyn will be in 6th grade and Braxton in 3rd. They are excited to start school. This is the first year I am actually ready for them to go back to school they have been fighting non stop every day I am so tired of it.
RaKelle turned 13 in June and she is definantly a teenager she woke up one day with the attitude and I am not really sure how to handle her she has been such a great kid and she still is she is just testing me. For her birthday I surprised her with tickets to the Osmond Brothers Concert, we went to dinner and then to the concert it was so fun and to see her face was so amazing. She loved it the whole time. I have to explain why I got the tickets because they are an older group, when I was pregnant with her she wasn't moving at all one day and I was getting worried I was getting ready to call the dr when Donny and Marie talk show came on and Donny sang on the show, she went NUTS she didn't stop moving until the song was over, it was cool, when she was a baby if I couldn't get her to stop crying I would just turn a song on from Donny and she would quiet down. As she got older she knew when he was singing on the radio, she had an imaginary friend named Donny and she had a doll named Donny she still has that doll to this day. He wasn't at the concert but she still loved it. She always told me she was going to marry him. It was so fun to spend that time with her and to see her face when they were singing. The 2nd generation Osmonds were also there and this is the first time they have all been on stage together since 1996 so it was really cool to see. She has been so busy with different girls camps this summer and she just spent a week in Washington with my parents and her cousins and aunt and uncle, she will be home tonight and I can't wait to see her I miss her so much.
I am sure I am missing a whole ton of stuff for updates but I don't want to bore everyone. Hopefully as soon as we get back into the swing of things with school and be on a normal schedule I will be able to keep up with the updates.
I can't believe school is starting again already. RaKelle will be in 8th grade. Ashlyn will be in 6th grade and Braxton in 3rd. They are excited to start school. This is the first year I am actually ready for them to go back to school they have been fighting non stop every day I am so tired of it.
RaKelle turned 13 in June and she is definantly a teenager she woke up one day with the attitude and I am not really sure how to handle her she has been such a great kid and she still is she is just testing me. For her birthday I surprised her with tickets to the Osmond Brothers Concert, we went to dinner and then to the concert it was so fun and to see her face was so amazing. She loved it the whole time. I have to explain why I got the tickets because they are an older group, when I was pregnant with her she wasn't moving at all one day and I was getting worried I was getting ready to call the dr when Donny and Marie talk show came on and Donny sang on the show, she went NUTS she didn't stop moving until the song was over, it was cool, when she was a baby if I couldn't get her to stop crying I would just turn a song on from Donny and she would quiet down. As she got older she knew when he was singing on the radio, she had an imaginary friend named Donny and she had a doll named Donny she still has that doll to this day. He wasn't at the concert but she still loved it. She always told me she was going to marry him. It was so fun to spend that time with her and to see her face when they were singing. The 2nd generation Osmonds were also there and this is the first time they have all been on stage together since 1996 so it was really cool to see. She has been so busy with different girls camps this summer and she just spent a week in Washington with my parents and her cousins and aunt and uncle, she will be home tonight and I can't wait to see her I miss her so much.
I am sure I am missing a whole ton of stuff for updates but I don't want to bore everyone. Hopefully as soon as we get back into the swing of things with school and be on a normal schedule I will be able to keep up with the updates.
Sunday, June 3, 2012
10 things I never thought I would say to my spouse
I have been thinking a lot about how my life is not that "normal" and I have to laugh at some of the things that I say to Jaren. I never thought I would say some of the things that I say to my husband or about my husband.
1. go to time out for fighting with your kids.
2. you can't say things like that in public, you will get hit.
3. go play nintendo before I hurt you.
4. I am watching my friends husband tomorrow, he has the same type of thing as Jaren. If you don't behave you will be grounded.
5. come here so I can help you put your pants on correctly
6. let me help brush your hair
7. go to bed or you will be grounded tomorrow.
8. please go on a walk but don't get lost.
9. no I don't need any help go watch a movie or play nintendo
10. please go to sleep so that I can go to bed and sleep for some of the night.
I guess I just have to laugh at this, these things you say to your children most of the time but I never in a million years thought that I would have to treat my husband like a child and put him in time out and tell him to stop fighting with his kids. Most of the time he doesn't know what he did to get in trouble he just knows that when I am mad he better go to his room and think and then he has to apologize even though he has no clue what he did.
Yesterday was really scary for us, we woke up late and his blood sugar goes low in the morning so I knew he would be low but when I got to him he was so zoned out and then he started to have a seizure, luckily I caught it in time and gave him some food before the seizure got worse and he got to a point where he wouldn't eat anything. He was so out of it yesterday he slept pretty much all day.
Sometimes I feel like I can't keep everything together. Our Wii broke a couple of weeks ago and I can not tell you how much I have wished for another one. He doesn't stop, we will be watching TV together and he has something to say about EVERYTHING that is going on. He just follows me everywhere and he keeps asking why the Wii doesn't work and when can we get it fixed. I didn't realize how nice the Wii was for keeping him entertained and occupied so that I could get things done without him always down my back for everything that needs to be done or when it is done he finds everything wrong with it. I thought I was going crazy with him playing 24/7 but really it was a help. I feel like he is progressing so much that he might even forget how to play by the time we get a new one.
School is out now and I am hoping that things will transition smoothly. I know it is hard for Jaren to have his schedule interrupted but I can't help it. I am sure he will throw some tantrums and get sent to his room for time out but we all live here and he needs to cooperate with all of us as well. I will have a meeting with the kids and explain to them that when they are home he isn't use to it and that he is used to doing his own thing so they need to be patient while we all adjust to the new schedule. He will still go to the daycare on Tuesdays with his friend and my friend and I and the kids will get to do some fun things together without any whining or tantrums from the dads.
1. go to time out for fighting with your kids.
2. you can't say things like that in public, you will get hit.
3. go play nintendo before I hurt you.
4. I am watching my friends husband tomorrow, he has the same type of thing as Jaren. If you don't behave you will be grounded.
5. come here so I can help you put your pants on correctly
6. let me help brush your hair
7. go to bed or you will be grounded tomorrow.
8. please go on a walk but don't get lost.
9. no I don't need any help go watch a movie or play nintendo
10. please go to sleep so that I can go to bed and sleep for some of the night.
I guess I just have to laugh at this, these things you say to your children most of the time but I never in a million years thought that I would have to treat my husband like a child and put him in time out and tell him to stop fighting with his kids. Most of the time he doesn't know what he did to get in trouble he just knows that when I am mad he better go to his room and think and then he has to apologize even though he has no clue what he did.
Yesterday was really scary for us, we woke up late and his blood sugar goes low in the morning so I knew he would be low but when I got to him he was so zoned out and then he started to have a seizure, luckily I caught it in time and gave him some food before the seizure got worse and he got to a point where he wouldn't eat anything. He was so out of it yesterday he slept pretty much all day.
Sometimes I feel like I can't keep everything together. Our Wii broke a couple of weeks ago and I can not tell you how much I have wished for another one. He doesn't stop, we will be watching TV together and he has something to say about EVERYTHING that is going on. He just follows me everywhere and he keeps asking why the Wii doesn't work and when can we get it fixed. I didn't realize how nice the Wii was for keeping him entertained and occupied so that I could get things done without him always down my back for everything that needs to be done or when it is done he finds everything wrong with it. I thought I was going crazy with him playing 24/7 but really it was a help. I feel like he is progressing so much that he might even forget how to play by the time we get a new one.
School is out now and I am hoping that things will transition smoothly. I know it is hard for Jaren to have his schedule interrupted but I can't help it. I am sure he will throw some tantrums and get sent to his room for time out but we all live here and he needs to cooperate with all of us as well. I will have a meeting with the kids and explain to them that when they are home he isn't use to it and that he is used to doing his own thing so they need to be patient while we all adjust to the new schedule. He will still go to the daycare on Tuesdays with his friend and my friend and I and the kids will get to do some fun things together without any whining or tantrums from the dads.
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