Thursday, August 19, 2010

Help from friends and family!

We have some awesome friends and family that are so willing to help out. My good friend Nikki Pearson decided to start a donation account for our family for people to donate to if they wanted to at any Zions Bank under Jaren Gordon Donation. I am so thankful that we have friends that care enough to help us in any way they can.

Jaren's cousin Mindy also was looking for a way to help us out and so she has decided that if you would like you can go to www.preparednessplus.net or www.mixameal.com and when you check out use the coupon code jamiegordon and you will receive 5% off your order, and a portion of the proceeds will go to Jaren. If you would like to order via phone call 800-588-5412. They specialize in dehydrated and freeze-dried foods, hand and electric grain mills, dehydrators, solar ovens, water filters, 72 hour kits, canning equipment, food storage cookbooks, non-hybrid seeds and sprouts and kitchen gadgets to fit any budget. If you don't know where to start and would like a free consultation please call 801-226-4188.

what a day, week, month!

This month has gone by way to fast. We have attended many family reunions which have been very fun. We were able to go camping with my family up Logan canyon to Guinavah-Malibu we had so much fun, and great food, and even better company. We loved it even though there were mice yuck. The first night we were there was a bit challenging Jaren has a hard time adjusting to new places so the night seemed very long, his blood sugar dropped low in the middle of the night that first night and it took us an hour to get it back up to normal range so we could go back to sleep. The second night got a little bit easier and he slept a little bit better. Saturday we went down into town and attended the Burnside family reunion it was a lot of fun to see family that we haven't seen for at least a year, the nice thing about it is we will get to see them all again in October when my little sister gets married.

Yesterday was very overwhelming for me Jaren had a really hard day with doing anything. He was trying to change his insuling pump site and couldn't figure out how to do it that is the most prominent thing I can remember him doing yesterday. I do remember telling him a million times to do one thing and he could not or would not do them it was very frustrating. I try to be as patient as possible but sometimes I have to just sit down and think to myself maybe tomorrow will be better and hope that it is.

Today all he wants to do is sleep, which can be overwhelming for me because there are things that need to be done. Sometimes I feel like I am on my own for everything I have to make dinner and lunch and breakfast and then they expect everything to be done for them. I also have a hard time balancing the kids and Jaren they all need so much attention I feel like I have a hard time keeping up and trying to balance I feel like I am being pulled in a million different directions and sometimes I just snap and freak out and then I have to put them in timeout or myself in timeout so that I can calm down and relax.

Hospice has been a GREAT support to me it has helped me out so much and made it bearable to deal with the crap I am dealing with, I even feel like I can now venture out and look for jobs again, we have found him a really nice day program that we can take him to if I have to go back to work. I even applied at a couple places and had an interview for Jordan School District as a reading aide or math aide. I am not sure how the interview went but I really enjoyed at least trying I don't know if I will get the job or not but if not I guess I will find other things that will work.

Saturday, August 7, 2010

August 7, 2010

This week has been crazy! so much to do and so little time. Jaren is now walking with a cane and it has helped him a lot, he is also on a medication that helps with nerve pain, we were told that the disease is eating away at his muscles so the new medication will help with that. The hospice nurse also brought out an E kit(emergency kit) which has morphine in it for instant relief hopefully that will help with the terrible pains he has been having in his legs, it also has medication for sleeping at night you know there is a problem when he wakes up at 3 AM and plays nintendo and thinks it is morning and has only had 3 hours of sleep because he has a hard time sleeping at night. I have a hard time staying awake with him at night because I am exhausted by the time night time comes and I need my sleep he can sleep during the day and I can't usually because I have kids to take care of.

I did have a great week with friends this week I was able to go to dinner with a childhood friend and she works for a neurologist so she was able to help me understand some of the things that Jaren is going through. It was so much fun catching up with each other I hope we can keep in touch and do that more often.

We were also able to go spend the evening at Cherry Hill with the ward for a ward party that was so much fun, we enjoyed ourselves a lot we enjoyed hanging out with the ward and going swimming.

The summer is coming to an end and I am not looking forward to the kids going back to school, we have enjoyed being together so much that it will be difficult to have a quiet house again they will all be in school all day now. We are looking forward to the rest of the summer with many family reunions and some camping. It is hard to believe that the summer is almost over.