Snow Shoeing

We had the opportunity as a family to go Snow Shoeing through the Alzheimers Association and through and organization called Splore who takes families that normally couldn't do things like snow shoeing because of a disability.  We had a great time met new friends, they figured we walked about 11/2 miles Jaren couldn't quite make it the whole time, he stopped about a mile and said I'm done I can't go any farther, so him and I and one of the Splore ladies stayed with us and Braxton made his way back to stay with us.  The weather was beautiful and we had layers on at the beginning and by the end we were down to short sleeves.   I was a little worried about Jaren because his legs and feet and arms have been in so much pain lately he can barely walk, today his legs were not working and so he has been on pain pills a lot lately.  I was even a little concerned about leaving him while I went to church, he made it Braxton did a great job taking care of him today.

I don't know what to do if he can't get around anymore I can't quit my job, and I can't afford a nurse for round the clock care.  I don't want to put him in a home, I think my kids would fall apart.  I don't know what to do I guess just a day at a time and sometimes hour by hour and then when the time comes we will make decisions together as a family.

The girls from the University of Utah undergraduate program have been coming over and they are so nice and my kids have had so much fun with them.  They are very easy to talk to and get along with.  We are doing a video interview for them on Friday and then we will be going to the class for Q&A and to tell a little bit of our story.  I am excited to get the word out.  I think if I am not willing to share my story people will not know what to do to help people like us.  I try my hardest to be strong and do everything I can BUT I can't do it all alone I need support from people to help me out.

We have Parent Conferences this week and I am a little worried about going because I don't like them.  I always feel like a crappy parent after I find out how far behind they get because I can't sit down with them every night for homework.  I went to RaKelle's this last week and she is doing really good, her grades are all up and she isn't failing any classes yet.  I know she is struggling with school and life in general but she is doing some great things.

Braxton is having major anxiety issues still, he doesn't want to go anywhere but if I have to go somewhere he is crying by the time I get home because he is so worried.  He has been leaving home for a little while with his best friend Rion but he always comes back with in an hour and then he will go back for a little while longer and then home.  Sometimes I have to send Ashlyn with him or RaKelle so that he will go and not worry about things one time RaKelle went with him and they stayed pretty much the whole afternoon.